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Byetta Users' Group


 NEW THREAD - WE HANG OUT HERE #4
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________________________________________________________________________ FOR GOOD PRICES ON INSULIN SYRINGES AND OTHER DIABETIC NEEDS VISIT THE MEDICAL SUPPLY SHOPPE ON AMAZON.COM! _________________________________________________________________ Yea and verily did I hear ye lizards weeping and wailing and gnashing of teeth from out of the wilderness. In answer to thy plea, herewith is set forth a new thread to be known by the numeral four. When full, if thou pleadest to me again, numeral five shall appear! Tooth gnashing optional. Ciao! Greg formerly known as the Grand Lizard
Posted by Greg77 at 12:20 PM - 518 Comments   Add a Comment  
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Comments:

Oh, My Hero..You will always be the Grand Lizard to me I'm still waiting for the email to hear your grandaughter sing. Please forward it to me.  
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by Jersey Girl (PM , CC ) on Tuesday August 7, 2007 @ 5:12 PM




I think you are both Grand, Lizards or not!!!! You and Jersey are my faves--my first friends on the Lizard Spit and I will never forget either of you. Seriously. No really! I love you guys.  
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by Reggie, Mama Lizard (PM , CC ) on Tuesday August 7, 2007 @ 10:06 PM




Reggie!!!! how are you? Its so good to see you on here.  
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by april (PM , CC ) on Wednesday August 8, 2007 @ 12:18 AM




Reggie, So good to see you here. I wish you would pop in more often. I will send you an email and we can catch up. I so miss your funny stories  
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by Jersey Girl (PM , CC ) on Wednesday August 8, 2007 @ 6:43 AM




Jersey,
I need your e-mail address to send you the song. Send me an e-mail at greg@medsupplyoftampa.net so I can have your address and I'll send it right away.
Greg
 
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by Greg77 (PM , CC ) on Wednesday August 8, 2007 @ 12:11 PM




Jersey,
I need your e-mail address to send you the song. Send me an e-mail at greg@medsupplyoftampa.net so I can have your address and I'll send it right away.
Greg
 
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by Greg77 (PM , CC ) on Wednesday August 8, 2007 @ 12:11 PM




Jersey,
I need your e-mail address to send you the song. Send me an e-mail at greg@medsupplyoftampa.net so I can have your address and I'll send it right away.
Greg
 
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by Greg77 (PM , CC ) on Wednesday August 8, 2007 @ 12:11 PM




Hmmm, I wonder why my last comment repeated 3 times? Very odd. Certainly wasn't intentional. I'm too old for this computer stuff!
Greg
 
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by Greg77 (PM , CC ) on Wednesday August 8, 2007 @ 12:14 PM




I started byetta last summer. It was great. I lost alot of weight.
Almost 30 pds. Then I started gaining weight again. Gained 14 pds back. When I started byetta I was somewhat nauseaus all the time and not
hungry. That feeling went away and I started eating again. Has that happened to anyone?? What am I doing wrong???
 
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by Jen (PM , CC ) on Wednesday August 8, 2007 @ 5:13 PM




Greg - Thanks for the new blog!

Greg - Thanks for the new blog!

Greg - Thanks for the new blog!

Nah - don't like the new trend of good things in threes....

Jen - are you on the 5 or 10 pen?

New Byetta pen development - a bubble. Should I be concerned?
 
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by Peanut (PM , CC ) on Wednesday August 8, 2007 @ 10:30 PM




I am on the 10 pen!!!  
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by Jen (PM , CC ) on Wednesday August 8, 2007 @ 11:54 PM




Jen, I remember you. You were here before right? The same thing is happening to me. I have been on for 16 months and the last 6 weeks my appetite has increased and I gained back a few pounds. We just have to try harder to eat better foods and not gain back out weight. It has me bummed, but I know I can beat it. I guess the longer you are on Byetta, it's appetite suppressant diminishes as our bodies get used to it. This is the 3rd time I attempted to send you a reply. The first one just did not appear and the second one my power went out just went I went to push "submit"  
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by Jersey Girl (PM , CC ) on Thursday August 9, 2007 @ 6:18 AM




OK, I am determined to make this 5 pen work. I still can't get the blood sugars where I want, even with good diet...so I am making the ultimate sacrifice...EXERCISE!!!. Now for me that is a 4 letter word. But...which would I rather do? Vomit and have diarrhea, or exercise? I was a tough choice...but I am going to try the exercise along with cutting carbs and fat. Started working on the mini-tramp yesterday . Got myself a little MP3 player and am working out to my favorite group, Pink Martini. Starting with 5 songs and figure every few days I will add another song. I can do it in the garage where no one can witness my lack of singing and dancing talent. Wish me luck. As I hear about others who have been on the Byetta long term and are starting to gain back the weight, makes me figure I better change my lifestyle now.  
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by tutorgirl (PM , CC ) on Thursday August 9, 2007 @ 12:49 PM




Peanut Don't worry about the bubble. I get them all the time. My Dr. said not to worry about it. I just make sure it is by the plunger.  
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by Cookie (PM , CC ) on Thursday August 9, 2007 @ 3:24 PM




Hi Guys, Go the results of my blood work today MY HGBA1C WAS 5 !!!!! It proves this spit works.  
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by Jersey Girl (PM , CC ) on Thursday August 9, 2007 @ 5:18 PM




Jersey Girl - a 5 is amazing....perfect....fantastic - shows the hard work YOU do with help from Byetta.

Tutorgirl - you go girl! You're making me think of adding some song and dance to my treadmill - might improve my attitude towards exercise, as well!

 
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by Peanut (PM , CC ) on Thursday August 9, 2007 @ 5:58 PM




Jersey- I am in awww!!! that is fantastic.
We could all take a few lessons from you.
You go girl!!!!!
 
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by april (PM , CC ) on Thursday August 9, 2007 @ 6:14 PM




WOW, Jersey, that is truly awesome!!! Now I am really committed to making this work. You are truly inspiring!!!
And a great support to boot. Kudos, girlfriend.
 
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by tutorgirl (PM , CC ) on Thursday August 9, 2007 @ 6:55 PM




Jersey adding to the other applause--FIVE----WOW!

The power is out in the east and south of our city--I pray the west and downtown stays intact. I need my air conditioning.

Jen--I don't think you are doing anything wrong---Byetta seems to have a very wide variance as to how it affects people--we've certainly discovered that this summer. I think Tutorgirl has the right philosophy--GOOD for you TUTOR incorporate exercise into your daily routine It makes you feel better all over and it increases the brain's own natural antidepressant. WIN WIN situation. Besides--if you can only fit in ten minutes at a time--do 3 of them at different points in the day and you'll get the 30 min daily that's recommended. Take care everyone--weekend is near! wolf
 
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by lone wolf (PM , CC ) on Thursday August 9, 2007 @ 8:06 PM




I have a question. What type of needle do most of you use with the pen? My PCP didn't tell me anything about it and the pharmacist kind of fumbled around figuring out what should go with the pen.  
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by tutorgirl (PM , CC ) on Thursday August 9, 2007 @ 9:31 PM




Thank all you Guys for the round of applause. I truly appreciated & DESERVED it It was worth the past 16 months of sticking myself 2 friggin times a day. Seriously, I will continue.
Another thing on my hair loss. About 1 year ago, my Endo told me my TSH was too low (0.75) I told him that my past PCP told me that I seem to run better with a lower than normal TSH and he warned me about my Cardiac status and too much Synthroid...Anyway he reduced it 25mcg and then again another 25mcg. My TSH today showed that it too high,8, which means I am not taking enough medication!!! I am waiting for him to call and tell me that I have to increase the Synthroid. Hmmm, I have been blaming the Byetta and it was the tiny little purple pill I take every day Again, thank you Lone, Tudor,Peanut& April and anyone I might have missed.(I feel like the idiot woman on the cruise ship commercial) You Guys are just too Sweet..Remember we should never throw in the towel. We are in this boat together and we all have to support each other when we are down and when we are up. I'm especially happy with Byetta stock
 
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by Jersey Girl (PM , CC ) on Thursday August 9, 2007 @ 10:36 PM




TUTOR--My doc put in this prescription for the needles for my pens:
NovoFine 30 gauge x 1/3" (8mm)
Disposable Needles, Single Use
Sterile, Non-Toxic, Non-Pyrogenic
Novo Nordisk Corp.

Hope this helps wolf
 
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by lone wolf (PM , CC ) on Friday August 10, 2007 @ 10:05 AM




Tudor, my needles are 31 gauge x 5/16"  
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by Jersey Girl (PM , CC ) on Friday August 10, 2007 @ 10:48 AM




Thanks, Jersey and Wolf. I have what you are using Wolf, so looks like I'm good. Now another question for all you experts out there. Like I said before, I have been eating very little with very little results in the BS numbers or weight loss. Could I be eating too little? I've probably been doing 1000 cal. per day. I going to start back religiously following my diabetic exchange diet and see if that helps. I figure that one is around 1400-1500 and balanced. Can eating too little effect you sugars? As I struggle through this, I've been thinking more about going back on the 10 pen when school starts and my mornings aren't so hectic.  
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by tutorgirl (PM , CC ) on Friday August 10, 2007 @ 11:32 AM




Hey guys, just to let you know.....

You can use ANY BRAND 30 or 31 gauge, 8mm needle in the pen. The best ones are coated with silicone so they go in real easy with little or no pain. It should say on the box that they are silicone coated. The only ones I know for sure are silicone coated are Owen Mumford, and I just found them for sale on line at DiabeticExpress.com for $18.99 and at jandbmedical.com for $17.65. But in the past when I was on Byetta I have found them as low as $12.00. Shop around on line, you'll find them cheap.
Ciao!
Greg
 
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by Greg77 (PM , CC ) on Friday August 10, 2007 @ 11:53 AM




Thank you, Gregg. No wonder I hurt - I'm using BD 29 G, 1/2", but insurance provides them 100% - I'm going to call about the other brand.  
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by Peanut (PM , CC ) on Friday August 10, 2007 @ 6:40 PM




Tudor, I'm not sure how long you have been on Byetta, but it took me about 6 weeks before I noticed any weight loss. I do remember during that time I was not even eating 1000 cal. a day too. I'm not sure if it has anything to do with losing weight or just coincidental. DON'T get discouraged. Once it starts to come off, it continues for many months at a steady rate.  
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by Jersey Girl (PM , CC ) on Friday August 10, 2007 @ 9:03 PM




Hey guys! I use 31g 5/16 and insurance covers them. Apparently most insurance will cover whatever your doc says is right for you so if you want something different the best thing to do is ask for it and see what they say. Remember, I still take 3-4 injections daly so this really matters to me:-)! (BTW-29g sucks!)

I saw my endo today. Got an appt inunder 2 weeks! I guess I'm a good customer:-)! I was going to tell you all how pleased he was with my 6.3 A1c but Jersey just blew me out of the water! I am so jealous. I am going to have to try a lot harder. I am not losing weight but I am not gaining so I am not totally upset either as my biggest problem has been rapid weight gain cycles. I am still 65 pounds heavier than I wish but it's the same 65 pounds ever since January when I started Byetta and all kinds of other things are so much better. So now he is setting up all kinds of stuff for this January. 10mcg pens, metabolic tests, stress tests... you name it he plans to torture me with it. All in the name of making sure that the only real problem is the weight. Oh well... que sera, sera!

Congratulations Jersey! And I am glad to hear that it sounds like the hair mystery is solved. I was pretty sure it was not the Byetta but it did seem as if it had to be the culprit. Now, perhaps they can fix the problem!

Things are good on the farm. I've been teaching a bunch and my kids are doing so well. My 15 year old niece is starting to train her first young horse. It's so cool to see her get a tast of real accomplishment and satisfaction. I have to take some new pictures!
 
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by Lorilei (PM , CC ) on Friday August 10, 2007 @ 10:20 PM




Jersey I'm so proud of you. I just can't believe you are down to 5.
I'm glad you found out it wasn't the Byetta that was making your blond curls fall out. I've thought for years it is my thyroide( I can't spell for s---t) that is my problem. My tests always come out ok though. So does my sisters but she is on synthroid.
 
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by Cookie (PM , CC ) on Friday August 10, 2007 @ 10:30 PM




Hey, Guys...I think I misled you all about my hair. My hair started to fall out 2 months after starting the Byetta and my Thyroid studies were perfect until my results 3 days ago (15 months later). I had my last TSH 2 months ago and it showed that I was taking a bit too much Synthroid. My Endo kept reducing my Synthroid because I was taking too much and he reduced it too much. The thyroid probably added to the hair loss, but the it started when my TSH was good and I know it was not the cause at that point. At least I know that when my thyroid is back to normal, the hair loss won't be as great, but it will still be falling out I'm sure. My Endo is thrilled with my HGBA1C.This pen that I am on now is not working on mu appetite and its very frustrating.
Lorieli, Your HGBA1c is good too I am actually very surprised that your weight has not changed, but don't get discouraged, it is working on you sugar levels and thats just as important.
 
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by Jersey Girl (PM , CC ) on Saturday August 11, 2007 @ 7:41 AM




I use the BD Ultra-Fine III minipen needles, 3/16", 31 gauge. They do hurt a bit and I do have some bruising on my stomach. Guess I will ask my PCP for a different needle. Have lost a few pounds since starting Byetta, but have a lot to lose. Cannot wait to see what my next A1C is! I love reading all of your blogs. I haven't been doing too much exercising lately because it is too humid, but yesterday I walked around the hospital all day long with my aun't surgery. I cannot do my favorite activity which is swimming because I have a dogbite wound on my leg that I am going to the wound clinic for. The one good thing is that I find I am not so nauseous any more.  
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by Settermom3 (PM , CC ) on Saturday August 11, 2007 @ 10:19 AM




Another question I have is fingersticks. How many times a day are you guys doing fingersticks? I am up to 3 now, and my poor fingers are really feeling it, plus I type all day doing medical transcription, so I really feel it. I used to only fingerstick once a day at random times, but now on the Byetta I have to do 3.  
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by Settermom3 (PM , CC ) on Saturday August 11, 2007 @ 11:00 AM




Greg, I went on-line and ordered the silicone coated needles. My co-pay is $25 so didn't have to bother with the insurance for them so should be here next week. I'll let everyone know how they compare to the others.

Settermom, I do 2-3 finger sticks a day. I have the One Touch Ultra with the lancet that came with it. I found even though it was supposed to be less painful my fingers were still bruised. Then I purchase a really cheap Accu-chek monitor that was very inaccurate, but....it had this great lancet called called the Accu-Chek Softclix. It is great!!! I went on line and ordered the monitor for my mom who has to stick 4 times a day so that we could the lancet for her. She is so much happier about her finger sticks. The monitor runs about $20-$25 and I have since seen it at Wal-Mart. It is called the Accu-Chek Active glucose meter. It really made a difference in my fingers. Maybe you can find the lancet device to purchase separately. Good luck.
 
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by tutorgirl (PM , CC ) on Saturday August 11, 2007 @ 12:12 PM




Hope you don't mind, but I am going to join your Byetta group. I started using Byetta 5 days ago, & it is the first time I have ever used an injectable medicine. The nausea only lasted a few days, but the jitters show themselves every morning. I use the 10 pen, but my use seems to different from most of you guys. I only stick 2x's per day & I only do my BS once & that is in the morning time. Of course my friendly PCP wasn't very familiar w/ the Byetta pen & actually told me I can carry it around w/ me during the day that I don't have to refridgerate after each use. My PCP has now retired (3days ago, but only 1 day after prescribing the pen). Don't worry, I read the entire manual & watched the video, my pen stays in the fridge. My BS numbers are running in the 140's every morning, is that good? I do notice my appetite has all but disappeared, especially those pesky snack cravings.
I'm glad I found this page. Now I am a little less nervous about this new road I am traveling.
 
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by baker4life (PM , CC ) on Sunday August 12, 2007 @ 10:56 AM




Hi & Welcome Baker, I started on the 5mg 2x's a day and after 1 month went to 10 mg 2x's a day. That is what we all do. No one injects more than twice a day-1 hr. prior to breakfast and dinner. As long as there is at least 6 hours in between injections you are ok. I don't have much time to post right now, my pool is calling me. More later and it sounds like you are off to a great start. Not too many people can adjust starting off on the 10 mg as you have.  
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by Jersey Girl (PM , CC ) on Sunday August 12, 2007 @ 11:29 AM




Hi Baker!--always good to add a newbie and the new info--I just found this wonderful place in April before I started Byetta this May. I have Irritable Bowel Syndrome (IBS) so the adjustment took awhile. Started with one 5 mg shot daily--then tried to progress to 2--one in evening and one in morning--however, had a big blow-up--literally---LOL (but it wasn't very funny at the time) related to my IBS--so went to every other day with Byetta. Two weeks ago--amped up to 2 5 mg shots daily--still doing OK--that's with taking Metformin also twice a day. Amazing, but great, that you have adjusted so quickly. I have an endocrinologist's apt. January 11, 2008, (first one I could get) so we'll see if I can amp up to one 10 mg shot in mornings. School is right around the corner-so at least by January--I will have been in routine for 4 months. Welcome to you

Jersey --there you go will yet another thing I didn't know--I thought the motherlode dose was ONE 10 mg shot in morning--didn't know there was yet another level--2 10mg shots--wow. Well, your A1C down to 5 recently certainly shows Byetta is worth it! WTG!


AAAWWWKKKKKK school starts in 2 weeks! I've been working in classroom so as to avoid beginning stress--coupled with working this week--I should have all of our 71 "moving boxes" unpacked--whew! Knee is still bothering me--but I'm now down to wearing the brace only part of the day. Still struggling to get to gym--but it's worth it.

Have a lovely Sunday everyone! Go Tiger! Get that PGA MAJOR!!!!!!!! wolf
 
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by lone wolf (PM , CC ) on Sunday August 12, 2007 @ 12:33 PM




Welcome Baker. I am relatively new to Byetta also, about 2 weeks now. I am injecting the 5 mcg twice a day. I could not get an endo appt until Sept 19, so we will see if he raises it by then. I haven't had the nausea lately, but I do find that with my Glucovance if I take 500 mg, I run a little high, but, if I take 1000 mg I tend to get too low. Hopefully, my endo can start me on a different oral medication. I can get a low reaction when my sugar gets to 100. I am now fingersticking 3 times a day. It sounds like you are doing pretty good so far.  
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by Settermom3 (PM , CC ) on Sunday August 12, 2007 @ 7:59 PM




Hi All, I have been lurking for about 2 1/2 months when I first started Byetta. Have had type ll for about 10 years and tried a variety of meds. I am now on 5mg of Glucontrol twice a day,and Byetta. This blog has helped me so much. Was on the 5 pen for 2 months and am now on the 10 for 2 weeks. Had most the side effects on the 5 and not many on the 10. Just for a few days the nausea and jitters. Have had a problem from the beginning with constipation, but am taking something for that. It took till the end of the second month to get my BS down. Was all over the place at first, now stays under 110. Have only lost 7 lbs, but am happy with that. It is amazing to me that for the first time in my life I am not hungry! Enjoy reading all the postings.  
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by SuzieQ (PM , CC ) on Sunday August 12, 2007 @ 9:42 PM




SusieQ, Enjoy the lack of hunger while it lasts. It seems my appetite returned over night. I am having a terrible time suppressing it. I will be starting my 17th month so I guess I have been lucky it lasted this far. I also had the nausea with the 5mg but little if any on the 10. Happy you found us and it sounds like your glucose levels are good too.  
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by Jersey Girl (PM , CC ) on Monday August 13, 2007 @ 7:42 AM




I just want to thank everyone for the great info I found on this blog site. I have severe hair loss and was searching to find other anecdotal instances of hair loss on Byetta. I learned more about the med in the 15 mins spent browsing the blog entries here than I learned in the previous 4 months since starting the med. Thanks!  
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by BeachBum (PM , CC ) on Monday August 13, 2007 @ 1:08 PM




Ok, BeachBum I finally found someone with my problem..I have been on Byetta for 16 months and from the second month my hair started to fall out. I had very thick hair, thank God, at that point. NOw it is getting dangerously thin. Did you ask your Doctor about Byetta causing it? I have asked my Derm., Cardiologist and Endo. They all agree that it is not documented, but possible since it is such a new drug. My Endo told me in May that when I returned in Sept. he was going to stop the Byetta. I go back in a couple of weeks and even though my hair is still falling out, I'm not sure that I want to stop. I am happy you found us and very interested in your situation  
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by Jersey Girl (PM , CC ) on Monday August 13, 2007 @ 5:20 PM




I had been doing pretty good with my sugars coming down some, but last night I ate a little bit of mac and cheese, and this morning my fasting was 183. Shame on me! No more of my favorite foods--mac and cheese and pizza. I gave ice cream a long time ago! On a good note, I had my last wound clinic visit today. The dog bite is almost totally healed, so I only have to use the SilvaSorb for 4 more days and then just use dry Band-Aids for 2 more weeks. Hooray!  
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by Settermom3 (PM , CC ) on Tuesday August 14, 2007 @ 4:34 PM




Hi newbies SuzieQ and BeachBum! So glad to have your inputs. Yes, this site is a treasure. Meds are such a crapshoot--and the reactions to them a litany of differing results. Everyone's story is so important--don't ever hesitate to add your 2cents worth--well with inflation--that's probably a $1 worth now

Settermom--I'm kinda surprised that your fasting BS was still that high in morning--I, too, have had lapses with food since starting Byetta in May--and one of the highest readings I had was 167. I'm still not sure you have to give up little tastes of your "comfort foods" now and then. Of course--there are folks here who could speak to that better than I.

OK--I have a question of my own--it comes from this summer mostly on 2 5 mg shots--first in July every other day--now for past 2 weeks 2 5mg shots DAILY--of course with Metformin.

Could anyone tell me if you noticed anything about taking Byetta and a loss of energy and increased sleeping?

I can't tell you how lazy and sluggish I've been all of July and now in August. It's like a rollercoaster. Last week--I went into the gym and later worked 3 hours in my classroom--trying to get organized for school year. Monday--I blew off by sitting at this computer playing POGO games--I was lucky to make it to my Weight Watchers meeting at 5:30pm--where I discoverd I gained back 1.8 pounds of the total 9 I had worked so hard to lose this summer.

This morning--I was all set to go to gym and then to school--but slept in to 11:00 almost noon!!!!!!! I NEVER HAVE DONE THAT!!!! Blew off school --now will probably go Thurs & Fri. I know I came off of a terribly stressful school year as well as the boxing event in March--but hey--by July--you'd think I'd have some energy back--I'm not THAT old!!

Did I just suddenly become a slug or could it possibly be linked somehow to Byetta? Would appreciate any feedback. Enjoy this evening--- wolf
 
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by lone wolf (PM , CC ) on Tuesday August 14, 2007 @ 6:01 PM




Lone, Remember Greg saying how he was so lethargic and when he stopped Byetta he realized how much more energy he had. I'm not sure if it has affected me that way, I have been on it so long and I guess, Like Greg, I will realize when I stop it. I do think its a big possibility.  
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by Jersey Girl (PM , CC ) on Tuesday August 14, 2007 @ 7:19 PM




Lone Wolf, I find I am a bit more peppy since starting Byetta, perhaps because of lower sugars. My sleep pattern has not changed much though, have always had trouble getting to sleep and am going to have a sleep study done soon.

What is this thing with the dark chocolate? I was reading some of the old blogs and saw it mentioned but not the theory behind it!
 
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by Settermom3 (PM , CC ) on Tuesday August 14, 2007 @ 7:21 PM




Settermom-thanks for quick reponse So glad you feel more peppy! Maybe if I could lose more weight--I would gain some energy back; however, I was 9 pounds heavier during school and I certainly wasn't sleeping this much! I have two weeks to get my butt in gear--I'll keep trying--have no choice here About th Chocolate--sorry--can't help you--I'm not a chocolate fan.

Jersey--thanks also for quick answer I do remember Greg's lethargy--however, he was going through some really deep health problems.... I just don't know--guess I'll have to solve this myself... wolf
 
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by lone wolf (PM , CC ) on Tuesday August 14, 2007 @ 7:41 PM




Hi everyone. I just finished reading and catching up with you guys starting with July 13th. That's right, Friday the 13th. On that fateful night I fell and shattered my ankle and have been in the hospital 4 weeks. Needless to say they didn't give me my Byetta in the hospital. I called my PCP and he ordered the 10 pen. I have not started it yet because of all the pain meds I'm on. Plus I am really afraid how sick I am going to get on it as I was on the 5 pen before I blew out my ankle. Along with everything else I came home from the hospital and since they were giving me 4 pills a day of metformin I started that regiment at home. The only problem being my pills were 1000 mg and the hospitals were 500. What a doofus I am. Anyway I am now on absolutely no medicine for my diabetes and have to have blood work done to make sure I do not have a toxic level of metformin in my blood. Geez, what a month. Not allowed to put any weight on my ankle for 3 months so I'm camped out in the den with walkers and wheelchair and commode. I really feel like a giant burden. Anyway, do any of you think that I will probably get sick when I start the 10 pen. I do.

On a lighter note I've read the past blogs and I am happy for you Jersey with your 5 and Greg sounds to be doing a little better.

Hello to all the newbies as that is what I am and find this blog very uplifting and helpful.

 
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by BarbJean (PM , CC ) on Tuesday August 14, 2007 @ 10:20 PM




What an awful Friday the 13th event -you sound like you're making the best of it. No diabetes meds sounds daunting - it'll take your body quite a while to readjust to a new regime. Hang in there.  
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by Peanut (PM , CC ) on Wednesday August 15, 2007 @ 6:31 AM




BarbJean, I thought about you and wondered what happened. I thought you fell off the Byetta Wagon. You fall was much worse. I can't imagine an accident like that causing so much pain and suffering. Take care and I'm happy you back. We missed you  
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by Jersey Girl (PM , CC ) on Wednesday August 15, 2007 @ 7:51 AM




More info on Avandia

http://news.yahoo.com/s/ap/20070815/ap_on_he_me/diabetes_heart_failure_6;_ylt=Aq1dkMtO6tBHQSfuzbyX5twE1vAI
 
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by Dog Mom (PM , CC ) on Wednesday August 15, 2007 @ 1:17 PM




OK, general question for all you spit users out there. How many of you do a low carb diet? I started eliminating grains and starchy vegetables from my diet and I'm watching my numbers come down. I just got Dr. Richard Bernstein's book "Diabetes Solution" and am anxious to see how this all works. Many members of another forum I frequent are really sold on the low carb diet to control their glucose levels. I read a ton of reviews about his book on Amazon by people who are following his plan and they can't sing his praises loud enough. Any one else familiar with his book?  
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by tutorgirl (PM , CC ) on Wednesday August 15, 2007 @ 9:46 PM




I dont follow any particular diet. I just know that I dont eat much carbs anymore unless they are contained in my fruits and veggies. I dont have a desire for pasta, or alot of breads, we rarely eat potatoes, or rice. I have seen that some on here follow the south beach diet. I have read that book, and the omega diet and pull little bits from those and from lectures given by dieticians.
Just look for something that makes sense.
 
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by april (PM , CC ) on Wednesday August 15, 2007 @ 10:21 PM




Hi everyone,

I am brand new to Byetta and brand new to blogging. I took my first dose tonight before dinner. My pre-meal BS was 170...my 2 hour post was 77! I couldn't believe it and had to double check. I haven't had a BS reading below 130 in years. I actually am a little afraid that it will go too low. Should I check again during the night? I don't understand yet how long it stays and works in your system.

Thanks for this blog Greg and all the posters. I am really glad I found it, and on my first day too!
 
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by Theresa (PM , CC ) on Thursday August 16, 2007 @ 12:53 AM




I have really started to change my diet, cutting way back on breads, pasta, rice, etc. The one think that is hard this time of the year is all of that fresh sweet corn. I did allow myself one small ear last night, and it did not seem to affect my sugar all that much. I go back to my PCP next Friday, so hopefully he can adjust my oral medication. He had me on Glucovance which is a combination of metformin and glyburide, so I think with Byetta I need to come off one or the other. I am looking forward to that small piece of birthday cake on Saturday.  
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by Settermom3 (PM , CC ) on Thursday August 16, 2007 @ 8:29 AM




I went through alot of the book last night and I think probably the most important aspect I have gleaned so far is to test, test, test. Find out what different foods do to my sugars. He advocates no fruits at all, but I'm going to see what different ones do, because I love fruit! And my BS was 86 this morning...they have been coming down for several days now. So if I can get them down without going to the 10 pen I will be ecstatic!  
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by tutorgirl (PM , CC ) on Thursday August 16, 2007 @ 9:32 AM




I was on Glucovance also when I started Byetta. My endo prescribed the met and glyburide separately so I could reduce the glyburide out as my blood sugars came down. Getting rid of the glyburide made my low blood sugar episodes disappear and made it easier to lose weight. I only take the metformin at this point.  
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by Peanut (PM , CC ) on Thursday August 16, 2007 @ 9:39 AM




Hello everyone,

I have been reading your comments this morning and am so thankful to have found you guys. I took my first 5 mg dose this morning and am anxious about this new experience. I had an awful bout of nausea for about 10 minutes about mid morning, and now feel pretty good. I think maybe I ate too much breakfast (this from reading your info). I have been diabetic for about 8 years (I'm 40) and have had BS under control until a year ago when I had to stop taking Metformin (it was making me very sick). After that my BS has been slightly high, but not over the top (140-200 most of the time). I am very committed to get my BS under strict control and to losing about 50 lbs. I hope to continue reading this thread and participating with you. This is wonderful and you have given me more information in the past hour than I have gotten from anywhere else. Thanks Greg for the blog!!! I feel I have someone else to talk to about this as I know no one who is taking Byetta.
 
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by gemini67 (PM , CC ) on Thursday August 16, 2007 @ 11:28 AM




Hello Greg, Jersey, Reggie and everyone I don't know,


Just to refresh your memory my name is Cheryl started taking byetta last November...still no major side effects I did however start to lose weight grand total now 34 pounds still playing with 1 or 2 pounds gain it lose it gain it lose it. Feel better than I have in years. So glad I did my research on avandia and got off it last november hope the years I spent taking it didn't do too much damage.

Jersey so glad to see that you finally have an answer to the hair loss.

so good to see you all again!



Kind regards,
Cheryl
 
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by Cheryl (PM , CC ) on Thursday August 16, 2007 @ 12:21 PM




Has anyone here been bothered by mood changes from taking byetta?
Like maybe your personality is a little "flatter"?
If anyone out there lurking has had this problem, please come on board and tell us what it is like and what the symptoms are.
 
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by april (PM , CC ) on Thursday August 16, 2007 @ 2:11 PM




Hi Cheryl, I wondered what happened to you. Happy to hear that you are still on Byetta and congratulations on your weight loss. I have had my appetite return and its up 2 pounds and down 1. GRRRRRRRRRRRR Its very frustrating. I though that it would last forever, or at least while I was on Byetta. I'm really afraid of gaining it back. Againm so happy to see that you are back. Sorry to say that my hair loss mystery is nor solved. Go back and read a more recent post.  
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by Jersey Girl (PM , CC ) on Thursday August 16, 2007 @ 5:15 PM




Peanut, do you take 1000 mg twice a day or 500 mg twice a day? I think right now I need to stay on the 1000 mg twice a day. Perhaps the glyburide is why I am not losing any weight or it could just be too soon!  
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by Settermom3 (PM , CC ) on Thursday August 16, 2007 @ 6:37 PM




metformin 1000 mg twice a day. I look forward to the day when I can start cutting that down, too, but so far my BS's aren't low enough. Losing the glyburide did kick start the weight loss.  
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by Peanut (PM , CC ) on Thursday August 16, 2007 @ 7:28 PM




Thanks peanut. I have another question. How do you guys handle traveling with your Byetta. I am going to a Nascar race in September on a bus. I have to be on the bus at 3:30 in the morning and will not be home until late at night. If I bring my Byetta with me, will it keep all day in the heat or should I just skip it for one day and just take my oral meds? I also don't want to be in a place where I cannot have access to quick food/drink if I get a low reaction. I can bring some candy, but we aren't allowed to bring our own beverages like orange juice.  
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by Settermom3 (PM , CC ) on Thursday August 16, 2007 @ 8:43 PM




Two things I know that work - the Frio cool system (haven't tried it myself in high heat, but I did get one and it really does work - google it) and a briefcase=size thermos (stick 3 ice cubes in a baggie in bottom followed by the pen wrapped in a papertowel). I had the thermos in 98 degree downtown Boston heat all day and it stayed cool 14 hours until I got back to the hotel room. Goes through airport security fine, too.  
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by Peanut (PM , CC ) on Thursday August 16, 2007 @ 10:51 PM




I have to be out all day today before I meet my husband for dinner and have to carry my pen, plus my lunch. I found a small coleman lunch box...looks like a teeny weeny ice cooler...and I put some blue ice containers in it and my lunch and my pen and everything stays great for quite awhile even sitting in the car in high 80--low 90 weather (we don't get much warmer than that in sw Washington).

On another note...I ordered the pen tips that Greg recommeded and tried them last night. Wow, didn't even feel them. And I also found out I had been giving myself the injections wrong. So between getting both things straightened out, my injections with the pen are totally painless.
 
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by tutorgirl (PM , CC ) on Friday August 17, 2007 @ 12:46 PM




Hi April...I have noticed many mood/cognitive changes since starting Byetta in February. I've been discussing this with several folks...
docs, friends, online friends. These changes have really made me wonder how much of a role glucose plays in mind/brain function...I
suspect a much bigger role than I ever realized. What have you noticed? Best thoughts, Nancy/seashell
 
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by seashell (PM , CC ) on Friday August 17, 2007 @ 6:16 PM




Well, today wasn't a good day for me. Took my Byetta and my oral meds. BS was 120 fasting this morning and 120 at 5:15 PM; however, I have been hungry all day and not feeling too well. I wonder if the side effects are catching up with me.  
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by Settermom3 (PM , CC ) on Friday August 17, 2007 @ 7:33 PM




My PA introduced me to Byetta on July 2, 2007. I tried the 5mg pen for the first 30 days and on Aug.4, started the 10mg. I also take Amaryl 2 mg in the morning and metformin 500 3xday. I am 50 and have had Type II for about six years. Even with adding oral medications and increasing them over the years, my numbers kept climbing. I have to admit, I was the Carb Queen and a devoted Chocoholic and didn't have the will power to "Just say no!"

I was amazed at the difference in my numbers the first 30 days. I only lost about 7 pounds, but my fbs that had usually averaged above 220 had dropped to 170. In the two weeks on the 10, I have lost an additional 6 pounds and my numbers are now around 130. We are both ecstatic about that, but I'm a little concerned about the nausea and diarrhea. Instead of getting better, it has gotten worse--much worse. There are days the idea of eating anything is sickening. And of course, not eating only caused me to get the trembles and shakes from low sugar.

Today, I took some immodium and actually ate lunch! Although I'm still a wee bit sick at the stomach, I'm not living in the bathroom tonight! While I'd love to lose a lot of my fluff ( and I am a BFW!) my first priority is to get the numbers down so I don't lose my toes and vision.

Viva la Byetta!
 
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by Mama Stone (PM , CC ) on Friday August 17, 2007 @ 7:37 PM




Seashell- I havent really noticed any changes so to speak. I ran into someone at a meeting the other night. He said that he couldnt take byetta as, although he didnt notice any difference, his family and coworkers could tell when he was taking it. I told him about this sight and invited him to come in and tell about it.
I was just curious if anyone else had any problems and had never linked it to the byetta.
 
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by april (PM , CC ) on Friday August 17, 2007 @ 10:59 PM




Just a few comments as I just read several days worth of posts. For travel I use the Frio. It was suggested once by someone on this list and I googled it and got one. Love it. You only need water and not ice. It stays cool for several days and fits in my purse. Also, I have three of Dr. Berstein's books and followed his diet for 5 years. It really worked until for no reason my numbers went up and couldn't get them back down with diet any more. Then my Endo tried me on several meds, suggested Byetta a year ago and I said no way was I going to go to a needle. So now here I am, 2 1/2 months on Byetta and so far it is great. I still follow Dr. Berstein's diet somewhat, but do eat a little fruit now and then and am not quite as rigid in my food choices. This list has been so much help and inspiration. Thank you all!  
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by SuzieQ (PM , CC ) on Saturday August 18, 2007 @ 12:48 AM




Hey Guys, I was tired of dealing with the appetite for the past 2 weeks and I did something I haven't done with Byetta. I started a new pen when I had about 10 days left on my old one. I wanted to see if it was the Pen and it was. I started a new one yesterday and can't believe how different my appetite is. Honestly,yesterday I ate 1/4 of what I have been eating the last 2 weeks. It does bother me that I threw away those 10 days on the pen when it cost so much, but I'm happy that I did. It would have really bothered me if I noticed no difference in my appetite. My Hubby told me to start a new one after complaining to him and gaining 3 pounds and I'm happy I did. When you think you are imagining that a pen is not working to its ability, I think you are right.  
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by Jersey Girl (PM , CC ) on Saturday August 18, 2007 @ 7:14 AM




I guess I have to play around with my food choices at night a bit more. Last night at 11 PM my FS was 94. I will get reactions on a higher value than most because my BS was used to being higher for so long. I figured I had better try to keep it up during the night, so instead of eating 1 graham cracker with my 4 oz of skin mild before going to bed, I ate 2. This morning my fasting was 174. I have a party to go to this afternoon, so I will have to be really careful what I eat. Thanks for the info on the cooler. I will probably go with the Frio since I can fit it in my purse. We are not allowed to bring our own food/beverages/coolers, etc onto the track.  
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by Settermom3 (PM , CC ) on Saturday August 18, 2007 @ 9:54 AM




Hello everyone.--It's simply a grand day here in Akron--air conditioner OFF! windows open--gentle breeze--hope your Saturday's are as enjoyable.

Have been reading recent messages--WOW--wonderful to see all the NEW folks adding their info to this site--the more info the better!

Two issues strike a chord with me--I guess I REALLY don't understand "QUALITY CONTROL" and Byetta. How can the "same" medicine vary from pen to pen? If this were true for other meds--some of us would be dead. I can't imagine having my blood pressure med--Avalide--vary from one bottle to the next. What is it with the manufacturers????????? So many of you have registered this complaint--I think it's time to talk with a rep from the company. It's not just a matter of $$$$$$$--it's our health.

Second is the appetite thing--once I sort of got my Irritable Bowel Syndrome under control--my appetite is immense--I never seem to feel full UNLESS I overeat--BUMMER. Of course not being able to do elliptical at gym due to my knee problems for almost a month now--has added to this problem I'm sure. In one session--35 minutes on elliptical--I can burn 450 calories.

When I went to nurse practitioner last week--we decided that I would stay on 2 5mg shots daily until at least October. I'm just not satisfied with FS readings in morning--very FEW mornings am I close to 100.

Well-that's it for now. Have been spending lots of time at school trying to unpack the moving boxes and rearranging furniture--just a week left before my life is again regulated by bells but the students make it all worth it

Again--welcome to all the newbies knowledge is power--the more we share stories the better. At least we know our stories aren't biased by a business "bottom line"--well that is unless you happen to own stock in the company

Anyway--enjoy your weekends everyone!
 
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by lone wolf (PM , CC ) on Saturday August 18, 2007 @ 10:54 AM




Byetta pen & quality control. I had an ineffective pen as well in May. I'm wondering if the pens aren't being kept refrigerated en route to the pharmacy or sitting out on a loading dock somewhere. Our pharmacist keeps the pen in a refrigerator, but I'm not so sure that the manufacturer ships them in refrigerated cartons (like with dry ice) until they reach the pharmacy. Definitely something that needs to be taken up with the manufacturer because it is obvously a widespread problem.

I used to wonder the same thing about mail-order meds. The post office certainly stores boxes in high temps at times and I know that can adversely affect any medication. I once had a liquid injectable delivered to my mailbox frozen. That's when I stopped using mail order for meds.

 
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by Peanut (PM , CC ) on Saturday August 18, 2007 @ 11:21 AM




Hi, I'm 62, a woman, insulin resistant, want to loose 30 pounds, and have not started taking byetta yet, but plan to at the end of the month. I appreciate all the input you folks have shared--it will make my "entry" into using this med a lot easier! I'm pretty sure I've suffered from insulin resistance/low thyroid since puberty. I am working with Cheryl Hart, MD who is based in Spokane, but does "traveling clinics" to California (I'm in Santa Rosa), Montana, and Washington (State).

She works with women (mostly, but men are catching on too) around hormones--including metabolic ones, such an thyroid and insulin. Although she started out as a ob/gyn, she now speaks of herself as a bariatrics specialist (don't think she's at all into the surgery stuff, tho'). A friend of mine who is on her program, started the byetta last week, and had minimum side affects. Dr Hart's 1st seminar is free and I learned so much about many things, plus she is almost a stand-up comedian. If you are interested in it, her website is www.hormonesbyheart.com. She also wrote a book called The Feel Good Diet (so-called because she is trying to raise seratoin levels through specific foods) and it has been really good for me although I haven't lost any weight on it.

In one of her two other workshops (which require $), she does a special exercise profile to find out what your fat burning range heart rate is (usually pretty low for anyone who is out of shape) and this can help lots with weight loss. I go to that one this week and will tell more about it if anyone is interested.

She also takes bloodwork to see what hormones are needed, then sends the prescription to a compounding pharmacy which creates a cream product based on that. Anyway, she is a new thinker in many ways and I'm so glad I found her.

I look forward to participating on this blog in the future. I am an architect but also a psychotherapist, and I believe many of my therapy clients concurrently need medical support as not all of their symtoms are "mental." I believe that more therapists need to pay attention to organic symptoms in their clients instead of blaming thoughts and feelings for suffering.

Best,
Lucas
 
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by Lucas (PM , CC ) on Saturday August 18, 2007 @ 7:07 PM




Peanut, I agree that there something has to be done about quality control. I have no choice.With my RX plan I get a 90 day supply for $30 with mail away service and at a local pharmacy, I can only get a 30 day supply, which is a bummer. Actually, the pen that I just threw away, came from my local pharmacy. It was from a voucher Amylin sent to me for the malfunctioned pen that I returned to them. I know one thing, it wasn't in my head, the last pen did nothing for appetite control and I shouldn't have wasted 2 weeks on it  
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by Jersey Girl (PM , CC ) on Sunday August 19, 2007 @ 11:09 AM




Dear Byetta-Pen Pals, WELCOME LUCAS--just read your entry. Welcome to LizardLand. This site works because we are all free to voice our opinions and experiences. The comradery is great! I agree that medical and behavioral professionals need to collaborate more often. It's easy to label people and file them away with a 1-2-3 list of instructions to fix them--but it rarely works. I'm going to forward the info about Dr. Hart to a young woman I think will be interested...and I will check it out myself too.

I am still contemplating re-starting Byetta. I find a new excuse everyday to put it off. I may wait until I see my doc. and get an A1c checked. I am getting more exercise, but I know my diet is out of whack.

Jersey--hope the new thyroid routine restores your golden locks. I think my hair loss is just aging--I just turned 59. I'm wearing my hair very short so the "fallout" isn't as obvious--also I refrain from looking in mirrors.

To all--I read your notes and am keeping you all in my prayers. Hang in there and be strong. SugarFreak
 
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by SugarFreak (PM , CC ) on Sunday August 19, 2007 @ 4:04 PM




Sugar- Im so glad to see you on here. Hope things are going well for you and your family.  
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by april (PM , CC ) on Sunday August 19, 2007 @ 5:29 PM




Sugar, I hope you had a great trip. I wonder if when/if you restart byetta will you have the side effects when your first started?  
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by Jersey Girl (PM , CC ) on Sunday August 19, 2007 @ 8:01 PM




Hi Sugar--as with everyone else--so nice to hear your voice! missed you! wolf  
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by lone wolf (PM , CC ) on Sunday August 19, 2007 @ 8:15 PM




Thanks for your welcome Sugar Freak. I hear you about the need we all have to determine our own course of action around these matters. Decisions about food and weight are such personal ones. I have searched so long to find solutions to intense hunger, jitteriness, and weight gain. My other Dr. keeps trying to blame Lyme's disease and had run out of answers--he didn't even really try to work with blood sugars because mine don't get all that high.

Byetta sounds like the most promising option so far, but in reading over hundreds of interesting posts on this blog, I see that taking it is a complex process and requires a lot of concentration. At least now that I've read these posts, I have better questions to ask Dr. Hart, and I may try to start slower so that I'm not doing to many dependent variables at one time!

Thanks again for all the valuable information you all are passing on to others.

Lucas
 
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by Lucas (PM , CC ) on Sunday August 19, 2007 @ 8:27 PM




Correction: to be fair I should say that my other Dr. did try me on Actos, but while taking it my heart started to pound a lot, and I was afraid to stay on it. I had him check me, but he told me it was just my "nerves", but as soon as I went off of it, the symptom went away. I was concerned that Byetta might do the same thing, but I haven't seen it mentioned as a symptom so I'm less worried.

Lucas
 
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by Lucas (PM , CC ) on Sunday August 19, 2007 @ 9:04 PM




Lucas--welcome--the more the merrier. I have only started Byetta this past May. I'm up to 2 5mg shots per day along with my metformin. Had an episode in June with Byetta and my Irritable Bowel Syndrome--terrible--however, the summer has seen a lot of improvement in my IBS complications. I think one of the best things about this site is the sincerity and honesty of everyone's info. Another wonderful thing are the comparisonsto be made among all the differing amounts of time spent on Byetta. Greg--our incredible founder of this site had a 2 year duration--I think JerseyGirl might be next with 16 months--then there are those newbies like me--2.5 months and all kinds of folks in between. This site is a wonderful source of information and support. It's not that we all adopt each other's symptoms as our own--but the fantastic thing is that we might at least find one or two others who are going through the same thing. Have a good Monday. wolf  
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by lone wolf (PM , CC ) on Sunday August 19, 2007 @ 9:13 PM




Hi Wolf--thanks for your encouraging post! I read about parts of your IBS episode--sounded really rough! My Mother has difficulties with IBS and it sure bothers her; I think she swears by something called Equalactin, but it's just an over the counter thing so don't know how powerful it is.

It is amazing to tune into all the experience on this site--a real treasure trove, and I agree with those who have suggested that Amylin should read all this material!! I bet it's worth more than their research trials!

Happy Monday to you,
Lucas
 
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by Lucas (PM , CC ) on Monday August 20, 2007 @ 3:30 AM




Welcome, Lucas. You will find so much support and info here. I know I was thrilled when I found this blog. I'd gone for years with no one to really discuss diabetic issues with and even though I've been diagnosed about 11 years was really pretty ignorant about the disease. Between this blog and another message bored I feel as though I've learned a ton! I've been on the 5mcg. pen since June. I went on the 10 for a week but was so sick with vomiting and diarrhea that I went back to the 5. No side effects with that one. I have also been on a really low carb diet for the past couple of weeks, and have watched my reading come down steadily. They are low enough now that I am able to lower my dosage of my oral meds. I'm not on insulin. I have also lost almost 16 lbs. since June. I meet with my doc again in Sept. and if this keeps up I hope to not have to go on the 10 pen. I know my eating right and doing some walking has really helped. I'm sure you have found reading through this blog that everyone's story is a little different and a little the same. everyone's body seems to react differently to the byetta and you and your doc have to figure out what works best for you. Good luck and again a big WELCOME!  
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by tutorgirl (PM , CC ) on Tuesday August 21, 2007 @ 12:42 PM




Hello All, we're having computer service problems out here in the boonies of KY. It was great to have greetings from you all. I am going to start Byetta again in the morning--am posting this so that I will be acc